Banca de DEFESA: SELMILÉIA FRANCIANE DE ANDRADE

Uma banca de DEFESA de MESTRADO foi cadastrada pelo programa.
STUDENT : SELMILÉIA FRANCIANE DE ANDRADE
DATE: 16/02/2024
TIME: 09:00
LOCAL: Videoconferência
TITLE:
Functionality of families of children on the autism spectrum in the pre- and trans-pandemic of Covid-19.

KEY WORDS:
Autism Spectrum Disorder. .Covid-19 family. Chronic Condition. Child.

PAGES: 106
BIG AREA: Ciências da Saúde
AREA: Enfermagem
SUMMARY:
ABSTRACT
Introduction: Families of children with Autism Spectrum Disorder (ASD) experience greater
burdens, challenges and stress when compared to families of children with typical development.
In addition to this, we assume that these families were exposed, during the COVID-19
pandemic, to additional demands that required adjustments and reorganizations in search of the
functionality of this system. Objective: To analyze the repercussions of the COVID-19
pandemic on the functionality of families of children with ASD. Method: Qualitative research,
guided by the Model of Resilience, Stress, Adjustment and Family Adaptation. The study was
carried out with families who have children diagnosed with Autism Spectrum Disorder and are
attended by a Special Education School of the State education network in the city of
Divinópolis-Minas Gerais (MG). Using a semi-structured interview script, 22 family members
(including mother, father, grandparents, brothers and sister) from 13 families of children with
ASD participated. The interviews were organized with the support of the MAXQDA 2022
software. Genograms and ecomaps were prepared to schematic representation of families and
their relationship with the community. The data was subjected to inductive thematic analysis,
based on the theoretical framework. The data coding process was carried out independently by
two researchers. The intercoder validation strategy was adopted to verify the congruence system
and validate the process. Results: The analysis highlighted five empirical categories (1) Family
functionality in caring for children with ASD during the COVID-19 pandemic restriction
period; (2) Negative repercussions of the COVID-19 pandemic on family functionality in the
care of children with ASD; (3) Daily family care for the child; (4) Family appreciation: from
diagnosis to coexistence and future perspectives; (5) Family management of stressors in the
context of caring for children with ASD. The results of these are presented in the format of a
scientific article throughout this work, based on 3 categories that relate especially to the context
of the period before and after the Covid 19 pandemic. Preliminary considerations: The
functionality of families of children on the spectrum autistic during the pre-pandemic period
was due to the presence of a social support network and extended family; offering care through
health, education and assistance equipment, with support provided by professionals to families
during the child's care journey. The isolation imposed by the Covid-19 pandemic generated
several factors that impacted the functionality of families.

BANKING MEMBERS:
Externa ao Programa - 1744965 - ELAINE CRISTINA RODRIGUES GESTEIRA
Externa à Instituição - JÉSSICA BRUNA SANTANA SILVA
Presidente - 1475791 - PATRICIA PINTO BRAGA
Notícia cadastrada em: 17/01/2024 11:45
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